National Native HIV/AIDS Awareness Day

national-native-hiv-aids-awareness-day

Courtesy:  Indian Country Today

It was just few days ago when I learned that March was designated as Women’s History Month.  Well, today, an identical thing happened to me which prompted me to put this post together in a hurry.  I found out just a few minutes ago that today is National Native HIV/AIDS Awareness Day.  I also discovered that my ignorance of the day is not surprising given that it is a little known observance day.  NNHAAD is a day geared toward drawing attention to and building support for HIV prevention, testing, treatment and care among American Indian, Alaska Native, and Native Hawaiian populations.  Here are some facts, according to the Centers for Disease Control (CDC):

  • Among American Indians and Alaska Natives (AI/AN), women account for 29% of the HIV/AIDS diagnoses. 
  • For Native Hawaiian and Pacific Islander (NH/PI) populations given a diagnosis, 78% were men, 21% were women, and 1% were children (under 13 years of age) in 2005.
  • From 2007 to 2010, new HIV infections among AI/NA populations increased by 8.7% (CDC).

While these percentages may seem low, one must remember to take into account the size of these populations compared to more populous races and ethnicities in the U.S. For example, according to the CDC, in 2005 American Indians and Alaska Natives ranked 3rd in rates of HIV/AIDS diagnosis, following blacks and Hispanics. To put this into numbers, the rate of new HIV/AIDS infections in 2008 per 100,000 persons were:

  • 73.7 Black/African American
  • 25.0 Hispanic/Latinos
  • 22.85 Native Hawaiians and Pacific Islanders 
  • 11.9 American Indian and Alaska Native 
  • 8.2 Whites
  • 7.2 Asians

Given that many of these populations live in rural areas, access to health care services can be difficult. Not to mention other roadblocks to obtaining needed services such as language and cultural barriers. Native communities have some of the shortest survival times after diagnosis of HIV/AIDS of all race and ethnicity groups in the U.S.

The report also showed that Native communities are not accessing the much needed care and attention after being diagnosed with HIV.  I also learned that about 26% are living with HIV and don’t even know it.  So, this means that since they don’t know that they have it, they wouldn’t seek medical help.  On the other hand, those who know that they have it, take steps to protect their health and take action to prevent spreading the virus to others.

Thankfully, there are public services like the IHS (Indian Health Service), an agency whose mission is to raise the physical, mental, social, and spiritual health of American Indians and Alaska Natives to the highest level.  Our goal is to assure that comprehensive, culturally acceptable personal and public health services are available and accessible to American Indian and Alaska Native people.  The IHS operates within Department of Health and Human Services.

The IHS National HIV/AIDS Program is committed to partnering with communities to create lasting change in the HIV/AIDS epidemic. We provide programs to assist individuals, families, communities, and health care providers to:

  • Understand how HIV is spread, and share knowledge about HIV with others
  • Get tested for HIV
  • Put policies and procedures in place to offer a HIV testing as a routine part of all health care
  • Improve access to care, treatment, and prevention services needed by people living with HIV and AIDS

IHS providers throughout the country are offering screening more often, collaborating with communities to increase education, and offering care or referrals where direct care is not available. We can all help to reduce the stigma within our culture and among health care providers regarding HIV/AIDS.

I was shocked to learn that March 20, 2016 was the tenth anniversary of this annual awareness day.  I wonder how many people out there who even know that it exists.  Awareness, education and access are key.  And I applaud the many dedicated organizations that are currently working hard within the Indigenous communities to break down barriers and to promote HIV/AIDS prevention and treatment.   

The theme for 2016 was:  “Hear Indigenous Voices: Uniting the Bold Voices of American Indians/Alaska Natives (AI/AN) and Native Hawaiian/Other Pacific Islanders.” Last year’s was:  theme is “Unity in CommUnity, Stand Strong to Prevent HIV.” On this day, we recognize the impact of HIV/AIDS on American Indian, Alaska Native, and Native Hawaiian communities.  The theme this year is “Unity in CommUNITY: Stand Strong for HIV Prevention.

It is my hope and prayer that long after this year’s National Native HIV/AIDS Awareness Day passes, that more people will find ways to stand strong for the Native communities.  We have heard the Indigenous voices, stood with them as we recognized that they are impacted by HIV/AIDS and now we must stand strong for prevention.  We have heard the voices, now it is time to be united in the fight to change the tide in this epidemic which discriminates against no one.  The HIV/AIDs is not one group’s or community’s fight but everyone’s fight.

Sources:  Humanitas Global Development; Indian Country Today; Indian Health Service

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Women and HIV/AIDS

December 1, 2012 was World AIDS Day.  Different organizations such as Project Have Hope, SOS Children’s Villages, One Billion Rising and UNICEF Canada were raising awareness of a disease which has no cure.  Children are orphaned because of AIDS.  According to SOS Children’s Village, 33.3 million people live with HIV/AIDS and 3.4 million of those affected are children.  Lost, ostracized by family members and friends, these children are often forced to live on the streets in some of the most appalling conditions imaginable.

I remember watching the movie GIA with Angelina Jolie as Supermodel Gia Carangi who died of AIDS in 1986 at the age of 26.  She was addicted to heroin and other drugs.  She contracted HIV through a shared needle.  What a tragic movie it was to see someone so young and with a successful career spiral downhill because drugs had taken over her life.  She was thought to be the first famous woman to die of AIDS.

General Hospital’s Robin Scorpio came to mainstream attention during a 1990s story arc where her boyfriend Stone Cates dies from AIDS and Robin is diagnosed as HIV-positive.  Robin has since married Dr. Patrick Drake and the couple has a daughter, Emma, who, after a brief scare, is shown not to be infected by Robin’s HIV.

Even though there is way more information about the disease now than back in the ’80s, there are still some questions people have about HIV/AIDS.  Some of the frequently asked questions  are:

1. Are HIV and AIDS the same thing?

No. When someone is described as living with HIV, they have the HIV virus in their body. A person is considered to have developed AIDS when the immune system is so weak it can no longer fight off a range of diseases with which it would normally cope.

2. How is HIV passed on?

HIV is passed on through infected bodily fluids such as semen, vaginal fluids, blood, breast milk and rectal secretions. The most common ways HIV is transmitted are through sex without a condom and through sharing infected needles, syringes or other injecting drug equipment. You cannot get HIV through casual or day-to-day contact, or kissing, spitting or sharing a cup or plate.

3. Can you get HIV from oral sex?

The risk of HIV transmission from performing oral sex is low but it can still happen. It is best to avoid giving oral sex if you have cuts or sores in your mouth or bleeding gums, as this increases the risk of HIV entering your body.

4. How can I protect myself and others from HIV infection?

Always use a condom when having vaginal or anal sex. You may also want to use a condom or dental dam during oral sex although the risk of transmission of HIV is much lower. You can get free condoms from a sexual health clinic, which you can locate via the FPA website. Never share needles, syringes or any other injecting equipment.

5. What do I do if I don’t like using condoms?

Condoms have come a long way in recent years and you can now get condoms in different sizes, flavours, and with added features to increase pleasure and heighten sensation. Condoms are still the best way to protect yourself and others from HIV infection, and other STIs, so if you think you don’t like using condoms, it’s worth trying out some different varieties.

If you find using condoms or negotiating condom use difficult, it is worth speaking to your local sexual health clinic or GP.

Other questions are:

Will HIV definitely be passed on during sex between an HIV positive and an HIV negative person?

During sex, it is not an automatic consequence that HIV will transmitted. Compared with some other infectious diseases, risk of HIV infection from a single act of sex is usually low. But of course repeated acts of sex increase probability of transmission which is why it is important to have safer sex. Condoms are highly effective at preventing HIV from being passed on so condoms should always be used during sex to avoid HIV and other STIs.

There are other factors which can increase and reduce the risk of having sex with someone with HIV, but a condom is the safest and easiest way to prevent transmission and stay safe.

Is anal sex more risky than vaginal sex when it comes to HIV transmission?

HIV can be transmitted through both anal and vaginal sex, but in some circumstances there is greater risk involved in anal sex. This is because anal sex carries a greater risk of trauma (such as tearing of the skin and bleeding) which makes it easier for the HIV infection to get through.

What are the symptoms of early HIV infection?

The most common symptoms of early HIV infection, usually occurring around ten days after infection, are fever, rash and severe sore throat all occurring together. This combination of symptoms is unusual in healthy people and indicates the need for an HIV test.  70-90% of people experience symptoms of early HIV infection but some do not experience any. After two-three weeks these symptoms disappear, and someone with HIV may then live for many years without any further symptoms or indicators that they are HIV positive.

What should I do if I experience symptoms of early HIV infection?

If you experience the symptoms of early HIV infection — fever, rash and severe sore throat occurring at the same time — then you should get an HIV test as soon as possible. It could be just a bad case of flu, but there is also a risk it could it be the early signs of HIV infection so it always best to know for sure by getting tested.

Here are some facts that every woman should be aware of:

Women have a higher risk of getting HIV from vaginal sex

Women are more likely to get HIV during vaginal sex than men are for several reasons.

  • The vagina has a larger area (compared to the penis), that can be exposed to HIV-infected semen.
  • Semen can stay in the vagina for days after sex, while men are only exposed to HIV-infected fluids during sex. Semen left in the vagina means a longer exposure to the virus for women.
  • Having untreated sexually transmitted infections (STIs) makes it more likely for a person to get HIV. This is especially true for women. Small cuts on the skin of the vagina are hard to notice but may allow HIV to pass into a woman’s body.

Women can pass HIV to their partners

Many HIV-positive women with HIV-negative partners worry about passing HIV. Research shows in the United States, men pass HIV more easily than women do. But women can still pass HIV to uninfected partners — both male and female — through all kinds of sex. This is because HIV is in blood (including menstrual blood), vaginal fluids, and in cells in the vaginal and anal walls.

If you are HIV-positive, you can pass the virus at any time, even if you are getting treatment. But you may be more likely to pass the virus if:

  • You have a vaginal yeast infection or STIs
  • You have recently been treated for a vaginal yeast infection or STIs
  • You were recently infected with HIV
  • Your partner has an infection or inflammation

The surest way to avoid passing any STI, including HIV, is to not have sex. If you do have sex, it’s important to alwaysuse a male condom correctly and every time you have sex.

Click here to find out when you should get tested for HIV and the types of tests available.

According to the latest (2008) WHO and UNAIDS global estimates, women comprise 50% of people living with HIV.

In sub-Saharan Africa, women constitute 60% of people living with HIV. In other regions, men having sex with men (MSM), injecting drug users (IDU), sex workers and their clients are among those most-at-risk for HIV, but the proportion of women living with HIV has been increasing in the last 10 years.

This includes married or regular partners of clients of commercial sex, IDU and MSM, as well as female sex workers and injecting drug users.

Gender inequalities are a key driver of the epidemic in several ways:

Gender norms related to masculinity can encourage men to have more sexual partners and older men to have sexual relations with much younger women.

Violence against women (physical, sexual and emotional), which is experienced by 10 to 60% of women (ages 15-49 years) worldwide, increases their vulnerability to HIV.   Forced sex can contribute to HIV transmission due to tears and lacerations resulting from the use of force.

Gender-related barriers in access to services prevent women and men from accessing HIV prevention, treatment and care.  Women may face barriers due to their lack of access to and control over resources, child-care responsibilities, restricted mobility and limited decision-making power.

Women assume the major share of care-giving in the family, including for those living with and affected by HIV. This is often unpaid and is based on the assumption that women “naturally” fill this role.

Lack of education and economic security affects millions of women and girls, whose literacy levels are generally lower than men and boys’.

Many national HIV/AIDS programmes fail to address underlying gender inequalities. In 2008, only 52% of countries who reported to the UN General Assembly included specific, budgeted support for women-focused HIV/AIDS programmes.

Virgin cleansing is the mistaken belief or myth that if a man infected with HIV, AIDS, or other sexually transmitted diseases has sex with a virgin girl, he will be cured of his disease.  Anthropologist Suzanne Leclerc-Madlala has recognized the myth as a potential factor in infant rape in South Africa.  Anthropologists Nora E. Groce and Reshma Trasi identified a variation of the practice of the virgin cleansing myth whereby individuals who are “blind, deaf, physically impaired, intellectually disabled, or who have mental-health disabilities” are raped under the erroneous presumption that individuals with disabilities are sexually inactive and therefore virgins.  It is most prevalent in Zimbabwe where the myth is perpetuated by traditional healers advising HIV-positive men to cure their disease by having sex with virgin girls.  Because of the virgin cleansing myth, as many as ten girls are raped every day. As many as 3,600 girls in Zimbabwe each year may be contracting HIV and AIDS after being raped.  UNICEF has attributed the rape of hundreds of girls to the virgin cleansing myth.   Cases have been reported in which a one-day-old infant was raped.  This is a practice that needs to be banned–abolished.  And gender inequality needs to be addressed so that women living with HIV/AIDS will get the treatment they need and not have to live with the stigma and shame.  Education and prevention are key to the fight against this epidemic and the organization amfAR founded in 1985, is doing this through innovative research.  Read here for the sobering statistics of women and HIV/AIDS in the United States and around the world.

This a disease that doesn’t discriminate.  I have read stories of women who contracted HIV from their husbands.  I read stories of women who contracted HIV from birth or from childhood.  HIV/AIDS affect single women, engaged women, married women, women of all races, ages, cultures, backgrounds, etc.  Many of those who found out that their partners, boyfriends, fiances and husbands were positive were devastated and afraid to get tested again for fear of the results.  Many of them contemplate suicide because they can’t face life with this disease.  Mothers worry about leaving their children and pregnant women worry about passing it on to their unborn children.  We all know that abstinence is the safest way to go but what do you say to a woman who at the age of 40 is still a virgin because she wants to preserve herself for her husband, finally meets the man of her dreams, they marry and then later down the road she finds out that he is HIV positive?  Her life is turned upside down.

I read that even though more men than women have HIV, infections among women is on the rise.  the greatest rates of infection occur among women of color (especially African American women). Younger women are more likely than older women to get HIV.   AIDS is second only to cancer and heart disease for women.

What can women do?

Get educated!  Educate yourself about the different ways that you can acquire HIV and then all the ways to protect yourself. Learn your status so that you can protect yourself and your partners.  Teach those around you about how HIV can be transmitted and how you can protect yourself from infection.  Work in your community to improve awareness.  You and your partner should get tested for HIV and other STDs so that you are aware of each other’s status before you have sex.  If you are a pregnant woman, it is especially important that you get tested early to help ensure, that if you are HIV positive, you do not transmit the virus to your unborn child.  Talk about HIV and other STDs with each partner before you have sex.  Ask your partners if they have recently been tested for HIV; encourage those who have not been tested to do so. Use a latex condom and lubricant every time you have sex.  Get tested for HIV once a year.

The good news is that many women with HIV are living longer and stronger lives. With proper care and treatment, many women can continue to take care of themselves and others.

Let’s continue to do everything we can to make HIV/AIDS history.

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Sources:  http://www.hivaware.org.uk/be-aware/faqs.php; http://www.womenshealth.gov/hiv-aids; http://www.who.int/gender/hiv_aids/en/; http://www.amfar.org/about_hiv_and_aids/facts_and_stats/statistics__women_and_hiv_aids/; http://hiv411.org/page.php?pID=30; http://en.wikipedia.org/wiki/Gia_Carangi; http://en.wikipedia.org/wiki/Virgin_cleansing_myth