Papa Joe

August 12, 1952.  It was a date she would never forget.  It was the day she buried the man who had been a father to her for over twenty years.  It seemed so surreal.  Papa Joe was gone.  She stood there alone in her grief, shivering although it was a hot and muggy day.

She stared at the ground where Papa Joe lay.  The tears rolled down her cheeks as she cradled his worn Bible, remembering how he used to read it to her when she was a child. When her parents had died he took her in and raised her as his own. She had grown to love the old man as if he were her very own blood.  Many of the townspeople had a problem with the widower raising a black girl and didn’t hide their displeasure but Papa Joe ignored them.  His business began to suffer.  Papa Joe was a tailor.  He knew that business would pick up again if he got rid of Cassandra but he refused to do so.  Even if he went bankrupt, he would never part with her.  He vowed that only death would separate them.

It was Papa Joe whom she shared her dreams with.  It was Papa Joe who comforted her when she went home crying because of the racial slurs and taunts.  Papa Joe was the only one who knew that she loved a man she had no right to love.  She had known Dr. Baker since she was a child.  He used to stop by and see Papa Joe.   He was always kind to her and brought her treats.  As she grew older, the visits became more frequent.  Papa Joe was no fool.  He could see that feelings were developing between them and he warned her, “You and the doctor have to be careful, Cassie.  This town will not take kindly to a relationship between a black girl and a white man.”

One night when Dr. Baker visited, Papa Joe excused himself and went to his room.  As soon as they were alone, the doctor took Cassandra into his arms and kissed her.  “I have wanted to do that all day,” he whispered when he raised his head to gaze down into her face.  “I know that there is a considerable age difference between us but I love you, Cassandra.  I tried to stay away when I realized that I had fallen in love with you but I couldn’t.  I had to see you.”

“I love you too.”

“I’m leaving for Paris in three weeks and I would like you to come with me.”

“Paris?” she exclaimed.  “Why there?”

“I have always wanted to go there and set up a practice.  My mother was French and your family was from Haiti.  So the language won’t be a barrier for us.”

“I can’t go to Paris with you, Robert.”

“Why not?”

“I can’t leave Papa Joe.  He has been so good to me.”

“Joe would want you to be happy and you won’t be as long as you remain in this town.”

“I can’t be happy knowing that he is here all alone.”  She could see the distress on Robert’s face and she reached up and touched his face.  “I love you for wanting to take me away with you, but I can’t.  I hope you understand.”

“I do,” he sighed.  “Well, I better be going.  Please say goodnight to Joe for me.”  They kissed and then she walked with him to the door.

“Goodbye, Cassandra.  Write me and let me know how you are doing.”  He gave her a piece of paper with an address on it.  She took it.  After a lingering look, he was gone–perhaps out of her life for good.

That was three months ago.  They had exchanged letters since and when Papa Joe died, she had written and told Robert.  She stood now at the grave, the tears falling.  Papa Joe had left the house to her and all the money he earned from his tailoring.  She had the money locked away in a box.  She didn’t want to go back to the empty house.

She had no idea of how long she stood there but the biting cold prompted her to start making her way back to the house.  She had just reached the front porch when she saw a car pull up and Robert got out.  He walked over to her and taking her arm he led her up the steps.  “I’m sorry I didn’t make it on time for the funeral,” he apologized as she unlocked the door and they went inside.

Once inside and the door was shut, she threw her arms around him and hugged him tightly.  She sobbed, letting out the pent up grief that had closed around her heart like a fist.  Robert stood there, holding her until the sobs subsided and then ceased.

When she was spent from all that crying, Robert took her over to the sofa and sat her down.  “Joe wrote me this note,” he said, handing it to her.  “I think you should read it.”

She wiped away the tears before she reached for the note.  Frowning, she slowly unfolded the paper and read it.  Dear Robert, I know that you love my Cassie and that you wanted to take her away from this cursed place.  If I know my dear girl she will not want to leave me.  She feels a sense of obligation to stay and take care of me as I have taken care of her all these years.  I don’t want to be a burden to her.  She is young and deserves to live her life.  There’s no future for her here.  I know that she loves you and that it broke her heart to be separated from you.  She thought I wasn’t aware, but I could see the unhappiness in her sweet face and I could hear her crying in the night.  She had sacrificed her chance for happiness for me.  I haven’t told her but I don’t have much longer to live.  When I pass on, which should be any time soon, please come and take Cassie away from here.  Take her to Paris where you and she will be free to love each other.  She can use the money from the sale of the house to pay for her fare.  I am sorry that I won’t be there for your wedding but know that I wish you both all the happiness in the world.  Please take good care of my precious girl.

Yours sincerely,

Joe

Fresh tears fell.  “I had no idea that he was dying.  He was tired more but I just thought that it was to do with age.  I am thankful that I was here for him.”

“Now, you can get on with your life.  We have his blessing.  Let me take you to Paris.”  He reached out and took her hands in his.  “Cassandra, I want to marry you.  Let me take you to Paris.”

She nodded.  “I will go to Paris with you,” she said.  Her life here was over.  There was nothing to keep her here.  Her future was with Robert now.  She would sell this house filled with so many wonderful memories and leave this town which had been the source of her unhappiness.  Yes, she will go to Paris and marry the man she loved.

 

crying african american woman in the 1950s

Rescued

She came from Niger, a place notorious for child marriage.

Her name is Abayomi which means “she brings me joy”.

She was only 14 when her parents insisted that she got married

Abayomi was filled with horror.  She had heard stories of  girls

as young as seven years  old being sold into marriage.

She didn’t want to get married–yet.  And when she did she

wanted it to be her decision.  She wanted to go to school and

study to be a doctor.   Her pleas fell on deaf ears.

 

A year passed and she was set to marry a man twice her age.

She had a wedding dress and the dreaded day was approaching.

There seemed to be no hope.  She thought of running away but where

could she go?  She couldn’t stay here.   She  thought of the horrible stories

she heard of young girls losing their lives when their parents married  them

of because they were having children when they were too young.  She didn’t

want to end up like them.  She didn’t want to die in childbirth.

 

No.  I’m going to fight this, she resolved.  She continued to refuse the

arranged marriage until her father cancelled it.  And to her surprise,

he encouraged her to join UNFPA’s Action for Adolescent Girls programme.

When Abayomi went to the programme, she met other girls who had left

school to marry and some were even pregnant.  She was happy that she had

escaped the same fate.  She had her father to thank  for that.  What had made

him  change his mind after he had been so adamant?

 

She learned that he had met a Christian who told him about Jesus.   Curious, she

asked him what he knew about Jesus.  He explained that Jesus would not have

wanted him to force her into doing something against her will.  Then, he gave

the Gospel of John booklet the man had given him.  After everyone else had

gone to bed, she read stayed up to read the Gospel.

 

As Abayomi read how Jesus rescued the woman caught in adultery from

being stoned to death, she realized that she too had been rescued from a

terrible fate.  She felt the tears spill down her cheeks and sliding off the

bed , she knelt on the floor.  “Thank You, Jesus,” she prayed.  She decided right

there and then to give her heart to One who had seen her plight and had come

to her aid.

 

Abayomi continued with her education and is currently in medical school.  She

is also encouraging other girls to say no to child marriage.  And her parents have

changed their views of forced marriage.  They believe that she should have the

right to choose her own husband and to marry when she is ready.

 

Nigerian Girl

Sources:  UNFPA; The Telegraph; BBC

Broken Heart Syndrome

“You can die of a broken heart — it’s scientific fact — and my heart has been breaking since that very first day we met. I can feel it now, aching deep behind my rib cage the way it does every time we’re together, beating a desperate rhythm: Love me. Love me. Love me.”
Abby McDonald, Getting Over Garrett Delaney

I recently learned about broken heart syndrome when Dr. Marla Shapiro was talking about it on TV. She mentioned that it was first described in 1990 in Japan as Takotsubo Cardiomyopathy.  Takotsubo is a Japanese term for an octopus trap because of the ballooning shape of the heart during an attack. What is broken heart syndrome?  It is a temporary heart condition caused by an extremely stressful event.  It is a recently recognized heart problem and it can strike you even if you are healthy.

People with broken heart syndrome think that they are having a heart attack when they have a sudden chest pain.  In broken heart syndrome, there is a temporary disruption of the heart’s normal pumping function while the rest of the heart functions normally or with more forceful contractions.

There may be shortness of breath, irregular heartbeats (Arrhythmias) or cardiogenic shock can occur. Cardiogenic shock occurs when a suddenly weakened heart can’t pump enough blood to meet the body’s needs.  This can be fatal it it is not treated right away.  In fact, Cardiogenic shock is the most common cause of death among people who die from heart attacks.  Any time you experience chest pain, you should call 911 and get emergency medical care.  All chest pain should be checked by a doctor.

Women are more likely than men to have broken heart syndrome.  It can be brought on by the death of a loved one, divorce, a break-up, physical separation, betrayal or romantic rejection, a frightening medical diagnosis, domestic abuse, natural disasters, job loss, asthma attack, car accident or major surgery.  It can even occur after a good shock such as winning the lottery.  It is more commonly seen among post-menopausal women. Research is ongoing to find out what causes this disorder and how to diagnose and treat it.

As mentioned before the most common symptoms of broken heart syndrome are chest pain, shortness of breath and very rapid or irregular heartbeat.  WebMD mentions two other symptoms, arm pain and sweating.  It is usually treatable.  Most people who experience it have a full recovery within weeks and and the risk of it happening again is low although in some rare cases it can be fatal.  The only way you can be certain if you have broken heart syndrome is for you to have some tests.  These tests used include the following:

  • Medical history and physical exam
  • Electrocardiogram
  • Chest x-ray
  • Echocardiogram
  • Blood tests
  • Coronary angiogram

If you have any questions about Broken Heart syndrome, please visit Seconds Count and download their PDF file.

A broken heart is a real condition.   In 2010 the Wall Street Journal wrote an article of a 63 year old woman named Dorothy Lee who lost her husband on night when they were driving home from a Bible Study group.  He had suffered from a heart attack.  At the hospital after she learned of his death, Dorothy began to experience sudden sharp pains in her chest, felt faint and went unconscious.  An X-ray angiogram revealed that she hadn’t suffered a heart attack.  There was no blood clot and her coronary arteries were completely clear. Dorothy had suffered from broken heart syndrome.  It was triggered by the sudden loss of her husband of 40 years.  She was literally heartbroken.  Thankfully, she was at the hospital when she had her symptoms and she didn’t die although the episode severely weakened her heart.  She required a special balloon pump to support her left ventricle during the first couple of days in the hospital.  Five days later she was discharged.  Despite being cautioned by doctors, she attended her husband’s funeral. She was able work through her grief positively and spiritually.   To date she has had no effects of the heart episode.

It is extremely important that if you or someone else experience any chest pain that you don’t ignore it or feel embarrassed to call for help.  At the first sign of symptoms, get help. This can save your life or someone else’s life and limit the damage to the heart.

A broken heart is not just something out of a romance novel.  It is a reality.

 

 

broken heart syndrome

 

Sources:  American Heart Association; Mayo Clinic; National Heart, Lung and Blood Institute; Wikipedia; Women Heart; WebMD; Uptodate

Women and Postpartum Depression

For 1 in 8 women, new motherhood is anything but joyous – Health.com

Mother In Nursery Suffering From Post Natal Depression

Postpartum depression is a very real and very serious problem for many mothers. It can happen to a first time mom or a veteran mother. It can occur a few days… or a few months after childbirth – Richard J. Codey

Recently on the news I saw that Drew Barrymore admitted that she suffered from postpartum depression after she had her second daughter.  It was a short-lived experience.  It lasted about six months. She was grateful for the experience because it was a constant reminder to stay present in the moment.  Her motto was, “one thing at a time.”

I have heard quite a bit about postpartum depression but this time I wanted to educate myself about it and my heart was touched by the experiences women go through.  First of all, I want to point out that it’s a real and serious condition.   I was appalled at how women with postpartum depression were treated.  Stigma, disbelief and lack of support from others prevent them from getting the treatment they desperately need.  So, they suffer in silence.  How terrible it is for a woman who has images of her child drowning in the bathtub or being smothered on his burp cloth, fearing for her sanity but is afraid to say anything so she keeps it from her husband for as long as she could. And how sad it is that a woman should feel judged for taking antidepressants for postpartum depression because of the mistaken belief that depressed mothers are self-centered and weak.

Women who have postpartum depression feel a triple whammy of the stigma reserved for people with mental illnesses.  Not only are they brought down by what many expect to be the happiest even in a woman’s life–the birth of a child–but also total honesty about their emotional state could invite scorn or even a visit from social services (Health.com).  

“We’re suffering from an illness that cannot be seen.  We don’t have a fever, swelling, vomiting, or diarrhea.  No open wounds that will not heal–at least not the kind you can see with the naked eyes.  So, many wonder if we’re really sick at all – Katherine Stone

Psychologist Shoshana Bennett, founder and director of Postpartum Assistance for Mothers endured two life-threatening postpartum depressions in the mid-1980s, at the time when help for women in her condition was hard to find.  “I was quite suicidal.  My doctor told me to go and get my nails done,” Bennett recalls.  Can you imagine going to your doctor because you are feeling suicidal and being told to go and get your nails done?  It didn’t help that she had an unsympathetic mother-in-law who, believe it or not, had been a postpartum nurse for years.  The mother-in-law had given birth to five children and had not suffered from baby blues with any of them.  When Bennett’s husband asked his mother what was wrong with his wife, her response was, “She’s spoiled.  It’s not just about her anymore.”

Bennett’s husband was angry, confused and upset with her.  Bennett hated herself and things got worse after her first child was born.   She was 40 pounds overweight and very depressed.  She went to her ob-gyn for help.  When she told him, “If life’s gonna be like this, I don’t wanna be here.”  His response?  He laughed and said that all women go through this.  So, there was Bennett, suffering from postpartum depression, with no support or help.  It was her own experience that motivated her to become a licensed therapist, specializing in postpartum depression so that she could counsel women who are going through what she did.

Sometimes women are given medications with terrible side effects.  Katherine Stone experienced this when the first psychiatrist she went to treated her with four or five medications.  She had to find a practitioner who specialized in the treatment of postpartum mental disorders.  She discovered the hard way that no all psychiatrists are experts in treating postpartum depression. “So many psychiatrists don’t understand the condition, don’t have the tools to treat this, and aren’t trained in varying ways in which women with this disorder need to be cared for,” she says.

It is recommended that you ask your ob-gyn, nurses and social workers if the hospital in which you delivered offers postpartum depression services or sponsors support groups for new moms. Ruta Nonacs, MD, Associate Director of the Center for Women’s Health at Massachusetts General Hospital in Boston, recommends, “Call Postpartum Support International (800-944-4773) to find a support group near you.  I also recommend seeing your family doctor.  They’re treating people with depression all the time and can also help with referral to a therapist.”

How can you tell that you have postpartum depression?  There are three postpartum conditions – baby blues, depression and psychosis.  Here are the symptoms outlined by Mayo Clinic:

Postpartum baby blues symptoms

Signs and symptoms of baby blues — which last only a few days to a week or two after your baby is born — may include:

  • Mood swings
  • Anxiety
  • Sadness
  • Irritability
  • Feeling overwhelmed
  • Crying
  • Reduced concentration
  • Appetite problems
  • Trouble sleeping

Postpartum depression symptoms

Postpartum depression may be mistaken for baby blues at first — but the signs and symptoms are more intense and last longer, eventually interfering with your ability to care for your baby and handle other daily tasks. Symptoms usually develop within the first few weeks after giving birth, but may begin later — up to six months after birth.

Postpartum depression symptoms may include:

  • Depressed mood or severe mood swings
  • Excessive crying
  • Difficulty bonding with your baby
  • Withdrawing from family and friends
  • Loss of appetite or eating much more than usual
  • Inability to sleep (insomnia) or sleeping too much
  • Overwhelming fatigue or loss of energy
  • Reduced interest and pleasure in activities you used to enjoy
  • Intense irritability and anger
  • Fear that you’re not a good mother
  • Feelings of worthlessness, shame, guilt or inadequacy
  • Diminished ability to think clearly, concentrate or make decisions
  • Severe anxiety and panic attacks
  • Thoughts of harming yourself or your baby
  • Recurrent thoughts of death or suicide

Untreated, postpartum depression may last for many months or longer.

Postpartum psychosis

With postpartum psychosis — a rare condition that typically develops within the first week after delivery — the signs and symptoms are even more severe. Signs and symptoms may include:

  • Confusion and disorientation
  • Obsessive thoughts about your baby
  • Hallucinations and delusions
  • Sleep disturbances
  • Paranoia
  • Attempts to harm yourself or your baby

Postpartum psychosis may lead to life-threatening thoughts or behaviors and requires immediate treatment.

For more information such as when to see a doctor, what your options are or how you can help a friend or a loved one, click on this link.

Why do some women suffer from postpartum depression while others don’t?  According to Marcie Ramirez, Middle Tennessee coordinator for Postpartum Support International, “People with a history of mental illness have a high risk, as do people on either end of the age spectrum–young mothers or older mothers.  If you have a history of minor depression, panic attacks, or OCD (Obsessive Compulsive Disorder), you are at a higher risk for postpartum depression.  A mother who experiences a traumatic birth is more likely to develop postpartum depression, as are new mothers who have a history of sexual abuse.  Bipolar disorder is a big indicator for postpartum psychosis, a very serious form of postpartum depression that affects about 1 to 2 out of every 1,000 new moms.”

Other predictors of postpartum depression are:

  • marital difficulties
  • stressful life events such as financial problems or loss of a job
  • childcare stress
  • inadequate social support
  • having to are for a child with a difficult temperament
  • low self-esteem
  • unplanned or unwanted pregnancy
  • being single
  • lower socioeconomic status
  • postpartum blues (Babycenter.com)

An article in the Daily Mail says that a woman’s risk of post-natal depression increases if she has a Caesarean section.  According to researchers, women were 48 per cent more likely to experience depression if they had a planned procedure rather than an emergency one.  Some women choose to have a Caesarean because they are afraid to give birth naturally, have had a previous childbirth trauma or want the convenience of a scheduled delivery.

Postpartum depression should be taken seriously.  Women are so overcome with fear and anxiety that they are afraid to be in the same room with their babies.  This affects them being able to bond with their babies which is vital to their development.  Women need to talk about their feelings, no matter how painful they are.  They need the support of their husbands and families.  “A functioning, healthy mom is vital to the family unit, and getting mothers with postpartum depression professional help can ensure that they avoid years of needless depression,” says Ramirez.

Advice for mothers who are experiencing depression is, “do what’s best for yourself so you can do what’s best for your baby” (Health.com).    Ann Dunnwold, PHD, a Dallas-based psychologist who specializes in postpartum depression, says, “The key is to have it on your own terms.  Sometimes the mother-in-law will come over to be with the baby, but what the new mom needs is for her to do the laundry.  To help, everyone needs to ask themselves what the mom really wants.”

There is hope for women suffering from postpartum depression.  The key is finding a health professional who specializes in treating it and who won’t brush you off or make light of it.  There are medications and treatments that can relieve or even reverse postpartum mood disorders. Don’t wait to get help.  Don’t suffer in silence.  Speak up.

If you know a woman who is going through postpartum depression or are married to one, please help out as much as you can.  Make sure that she gets enough sleep and encourage her to speak with her healthcare provider.  Encourage her to get some kind of support.

If you are suffering from postpartum depression, here is a list of postpartum depression support groups.  Perhaps reading stories of mothers going through what you are going may help. You’re not alone.   Help and hope are available for you.

Mature woman gives solace to crying adult daughter

Mature woman gives solace to crying adult daughter

Sources:   http://celebritybabies.people.com/2015/10/21/drew-barrymore-postpartum-depression-people-cover/?xid=rss-topheadlinesMayo Clinic; Baby Center; Postpartum Depression Progress; Health.com; Daily Mail; Brainy Quotes; Healthscope

The Cruel Cut

Photo:  The Guardian

FGM is recognized internationally as a violation of the human rights of girls and women. It reflects deep-rooted inequality between the sexes, and constitutes an extreme form of discrimination against women. It is nearly always carried out on minors and is a violation of the rights of children. The practice also violates a person’s rights to health, security and physical integrity, the right to be free from torture and cruel, inhuman or degrading treatment, and the right to life when the procedure results in death.

When I read the article in The Daily Mail on Female genital mutilation, I was incensed.  I couldn’t believe the reasons behind this barbaric practice.

  • In some cultures, it is seen as a right of passage into womanhood and a condition of marriage.
  • Some believe that the genitals will be unclean if the female does not have the procedure.
  • There is also a common belief that women need to have FGM to have babies.
  • Religous reasons

Egypt has one of the highest rates of female genital mutilation in the world and even thought the practice was criminalized in 2008, it still remains widespread.  Up to 92 percent of married women have undergone FGM and most females have the procedure between the ages of nine and 12.  Some have it done earlier than nine years old.  Can you imagine a five year old girl having part or all of her external genitalia removed?  There are no anaesthetics and antiseptic treatments used and FGM is performed with knives, scissors, scalpels, pieces of glass or razor blades.  This can lead to severe bleeding and infections which can last a woman her entire lifetime.  And it is estimated that 3 million girls are subjected to this barbarism every year in the UK, parts of Africa, Middle East and Asia.  And believe it or not, the procedure is usually done by a woman with no medical background.

Girls are going to grow up believing that their genitals are unclean and only a cruel cut can make them clean and fit for marriage.   What about the infections that they get or what about those who die from the procedure like the 13 year old Sohair el-Batea?  The doctor responsible for her death was convicted of manslaughter and sentenced to more than two years in jail.  This was a victory for women but more needs to be done.  FGM is still being practiced.

According to Egyptian Streets, statistics showed that 30% of married women believe that FGM should be banned but more than half were in favor of the procedure for religious reasons.  It’s hard to accept that women would be in favor of such a practice.  It is even harder to accept that they would force their daughters, granddaughters, nieces to go through what they themselves had gone through.  As a mother, I could never subject my daughter to this.  As a woman, I could never bring myself to do this horrible thing to another female.

And which religion would condone this?  God created the human body and He put everything in its place for a reason.  No one has the right to tamper with nature.  How could anyone use religion as an excuse to mutilate young girls and in some cases, babies?  And as far as FGM being necessary in order to have babies, that is ludicrious.  The reality is that FGM can cause infertility and increase the risk of complications in childbirth.

FGM, known as the “cruel cut” needs to be banned the regions of Africa and countries where it is still common.   According to the World Health Organization (WHO), it is estimated that more than three million girls in Africa are at risk.  Something needs to be done to stop girls and babies from is done in ignorance and in the name of tradition.  Girls should not see the parts of their bodies that is unique to their gender as unclean.  No where in the Bible is female circumcision practiced.  God never intended for girls and women to be circumcised.  It is a man-made procedure and it needs to be outlawed.

I encourage you to watch the video of Leyla Hussein, the founder of Daughters of Eve as she talks to her mother about FGM.    You can visit Leyla’s website to find out more information about FGM and see what you can do to stop this cruel and inhumane practice.

 

 

 

Source:  WHO; The Daily Mail

Administering Medication to Parkinson Patients on Time

Lately, *Wendy is plagued with the fear of losing her mother.  Granted her mother *Marian had lived a long and happy life but Wendy was not ready to lose her.  Marian was in her seventies.  She celebrated her 75th birthday a couple of months ago.  Wendy and her sister *Lauren had taken her out for lunch to celebrate.  In the past, Marian celebrated birthdays, Christmases and every Mother’s Day at her home or at one of her daughter’s home.  However, everything changed when she was diagnosed with Parkinson’s.  She couldn’t remain in her home after she fell.  She was a widow and had been living on her own.  She had to sell her home and move into a nursing home.  It took time for her to adjust to living in a room and having to depend on nurses to change and bathe her and do the things she used to do for herself.  It was hard to give up her independence.

She was still able to go and spend time with her children and grandchildren but lately, it was becoming increasingly difficult for her to move around without the wheelchair.  She had gone from using a cane to a walker and now to a wheelchair.  She had fallen several times.  Once Wendy went to visit her and was horrified to see the ugly bruises on her arms.  Marian fell because she tried to do things on her own when she should have called for help.  The nurse would go into her room and find her on the floor.  Thankfully, she hadn’t had any serious falls but Wendy worried about her.  She had heard stories of elderly women breaking their hips and suffering other serious injuries from falls.

Just recently, Wendy received distressing news.  Her sister Lauren informed her that their mother was not responding well because she hadn’t been given her medication that morning.  The last dosage was the night before so she was supposed to get the next one around 7 in the morning but the nurse hadn’t given her.  When Marian’s regular nurse found out two hours later, she decided to wait until 11 to give her her medication.  Lauren was livid.  She demanded to know why the nurse waited instead of giving her mother the medication right away.  As Wendy listened to her sister, she felt sick in the stomach.  Their mother had been without her medication for 15 hours.  She was lying in her bed, with her eyes closed.  She was aware that her nurse was in the room and was responsive but she couldn’t do anything except lie there.  Her nurse kept checking on her to make sure she was okay.  She was relieved when Marian woke up.  Marian’s doctor told the nurse to try to get the medication into Marian which she kept trying to do until she succeeded. The doctor said that it could take 24 hours for Marian to recover as a result of not getting her first dosage that morning.

The Administration at the nursing home acknowledged that two gross mistakes had been made.  The first nurse should have given Marian her 7:00 a.m. meds and her regular nurse should have immediately given her the meds at 9:00 when she realized that she hadn’t been given her first set of meds instead of simply waiting for the next set.  The director assured Lauren that they were taking measures to make sure that this never happened again.  They plan to follow up with the first nurse who neglected to give Marian her morning medication.

Wendy was thankful to God for watching over her mother who is okay.  Tears came to her eyes as she imagined her mother lying there with her eyes closed, unable to do much else and how it could have been much worse…

How many other Parkinson’s patients like Marian do not receive their medication on time?  According to an article written on the National Parkinson Foundation website, hospitals can be danger zones for people with Parkinson’s.

Hospitals are usually a safe haven for people with serious illnesses, but for people with Parkinson’s disease (PD) going to the emergency room or being hospitalized can be a nightmare, because their condition is more likely to deteriorate due to inappropriate care and the anxiety of being in an unfamiliar environment.

Parkinson’s patients are often afraid to challenge a hospital’s medical staff, because they assume that they know what they are doing, but many may have little or no knowledge about how to care for someone with Parkinson’s, said Dr. John Morgan, assistant professor at Georgia Health Sciences University.

Three out of four people with Parkinson’s do not get their medication on time when they go to the hospital, which can cause serious complications even death, said NPF’s National Medical Director Dr. Michael Okun. Even more alarming is that research shows that the majority of hospital staff do not know which drugs are unsafe for Parkinson’s patients, and they do not understand Parkinson’s disease.

People with Parkinson’s must take their medication on time, especially those with moderate and advanced Parkinson’s who are taking frequent doses of levodopa, a common Parkinson’s medication, Dr. Morgan said. “If medication is not taken on time, they can become stiff, rigid, tremulous and unable to move and prone to falls, etc. Even one hour off of a scheduled time can make a big difference,” Dr. Morgan explained.

There is no cure for Parkinson’s, but medication helps control symptoms by increasing the levels of dopamine in the brain. Dr. Morgan emphasized that medications should be taken 30 minutes to an hour before meals or an hour or more after meals, because the protein in food can inhibit the absorption of the medication into the body. If a person eats too close to their scheduled medication time, Dr. Morgan said it is better to eat a low-protein meal rather than delay taking medication.

The article mentions that one hour off of a scheduled time can make a big difference.  Wendy’s mother had been 15 hours off her scheduled time.  Another article states, “Medications must be administered on time to promote consistent therapeutic blood levels and prevent disabling symptoms. A delay of even 5 minutes can cause the patient to suddenly lose the ability to move, walk, and speak.”  If Wendy and Lauren wanted to, they could sue the nursing home for gross negligence and failing to administer the proper help.  Marian should not have gone through what she did.  She was in a facility that was supposed to take care of her.  Their negligence could have cost Marian her life.  For now, Wendy and Lauren are hoping that this doesn’t happen again.

Want to get involved in raising awareness for Parkinson’s?  Here’s how.

*These are not their real names.

Source:  http://www.parkinson.org/About-Us/Press-Room/NPF-In-The-News/2012/November/Hospitals-can-be-a-danger-zone-for-people-with-Par; http://journals.lww.com/nursing/Fulltext/2011/03000/Administering_medications_for_Parkinson_disease_on.24.aspx